Course Description:

This Rett Syndrome Awareness training course is designed for carers, healthcare professionals, and support staff to develop a comprehensive understanding of Rett Syndrome. The course provides insight into the causes, symptoms, progression, and challenges associated with the condition, equipping learners with the knowledge and skills to deliver effective, person-centred care.

Learners will explore the physical, emotional, and social impact of Rett Syndrome on individuals and their families. The training covers communication strategies, managing behaviours, and supporting mobility and daily activities, emphasising the importance of dignity, respect, and independence in care.

Topics include:

• Understand what Rett Syndrome is, including its genetic causes and progression.
• Recognise the symptoms of Rett Syndrome and how they affect communication, mobility, and daily living.
• Learn practical strategies to support individuals with Rett Syndrome in managing their physical and emotional needs.
• Gain insight into the use of assistive technologies and therapies to enhance communication and mobility.
• Understand the importance of person-centred care that respects the individual’s dignity and preferences.
• Recognise the emotional and social impact of Rett Syndrome on individuals and their families, and learn how to provide effective support.
• Explore the role of a multidisciplinary team in managing care for individuals with Rett Syndrome.
• Identify when to escalate concerns or seek specialist input.